Insights from AIDS2014

 

 RESULTS advocate Jeremy Picone with the #DeadlyDuo TB and HIV

AIDS2014 was the 20th International AIDS Conference and was held in Melbourne from the 20th – 25th of July 2014. The Conference had a very somber beginning with the loss of a number of delegates in the MH17 airline tragedy.  Nonetheless it proceeded, as it should have, and was a great tribute to those lost who had dedicated so much of their lives to improving the health and well being of others.

Over 14,000 delegates from nearly 200 countries, including 1,200 journalists convened at AIDS2014. There were those working in the field of HIV, as well as policy makers, persons living with HIV and other individuals committed to ending the pandemic. It was chance to assess where we are, evaluate recent scientific developments, lessons learnt and collectively chart a course forward.

Following on from the RESULTS National Conference  RESULTS staff, volunteers and Board members joined our global health advocacy partners from  ACTION at AIDS2014 with the purpose of profiling the issue of tuberculosis (TB)  in the fight against HIV and AIDS, as well as the important role of the Global Fund to fight AIDS, TB and Malaria in combatting these diseases.

These efforts were also greatly enhanced by working closely with international superstar and humanitarian Ms. Yvonne Chaka Chaka. The media that we were able to generate in the lead up to the Conference events also helped us to secure high profile meetings.

We were also proud that, for the first time ever, at an International AIDS Conference, TB was recognized as a neglected issue in the fight against AIDS, and this deadly duo was spotlighted with a dedicated TB+HIV Networking Zone.

Why was it important to profile TB and an AIDS conference?

TB is the leading killer of people living with HIV, causing one in five HIV-related deaths. TB is the most common presenting illness among people living with HIV, including those who are taking antiretroviral treatment. At least one-third of the 34 million people living with HIV is infected with latent TB and those co-infected with TB and HIV are 21-34 times more likely to develop active TB. So in reality, TB and HIV are two diseases that often attack as one.

The substantial progress made in the fight against HIV over the past years is threatened by the neglect of tuberculosis (TB). By ignoring TB, we risk undermining the huge financial investments made to help people living with HIV.

A new research report was released by ACTION at AIDS2014 entitled From Rhetoric to Reality: An Analysis of Efforts to Scale Up The Response to TB-HIV. It showed that joint TB-HIV activities are neglected by HIV programs and overwhelmingly carried out by TB programs, and that global guidelines to address TB-HIV have not been prioritized by leading donors and affected countries.


Here, three of RESULTS Australia's attendees share some personal insights

Maree Nutt, CEO:

It was very inspiring (and at times overwhelming) to be part of such an amazing conference where so many people, institutions, governments and organisations come together united for a common cause. Our ACTION partners, our staff and volunteers did an incredible job highlighting the issue of TBHIV as well as the role of the Global Fund in a variety of forums. Often with Yvonne Chaka Chaka by our side, we were also able to secure several meetings with senior government officials and parliamentarians during the week

Sarah Kirk, Global Health Campaign Manager (Tuberculosis):

The TB/HIV Networking Zone was a buzzing place during the conference. TB activists from all over the world presented, discussed their projects, argued for new initiatives and shared their wisdom.

The thing that struck me the most was how common TB really is – we hear statistics like 1/3 of the world is infected with latent TB, and in some populations (prisoners and miners), this can be up to 90%. However we don’t often hear about people who were happily going about their everyday lives before they got TB. Housewives, school boys, nurses, builders, journalists, grandmas, nuns and researchers. So many people from all over the world “I tested positive for TB” “I was treated for TB”.

For something as deadly as TB, it is frightening how ordinary and normal it is to have to take a 6 month-2 year course of drugs and injections.

The thing is, everyone at that conference were the lucky ones. They responded to treatment, they “only” caught TB, not MDR or XDR TB. They “only” had years of drugs with terrible side effects.

Lucky huh.

Nicole So, Volunteer and #DeadlyDuo Mascot:

I have never been inside a mascot costume before. It was heavy and cumbersome.

Mostly, people wanted to hug me. Or pretend to fight me. But one lady chased and punched me. The force rattled me and almost made me lose my balance. I couldn’t see her, the costume takes away most of my peripheral vision as well as give me blurry vision. But I could hear her say, ‘I hate you. I hate you. You took my brother. I hate you.’

Before this happened, we posed for lots of photos. It was fun and people were often amused to see us. But this incident made it real, it caused me to think about the harsh reality of so many People Living with HIV and AIDS, and the repercussions on the lives of their loved ones.

HIV causes the progressive failure of the immune system allowing for opportunistic infections to take hold. TB is the number one killer of PLWHA. Perhaps it was TB that took her brother’s life.

This emphasised the need to further our message of the important of TB and HIV coinfection. No one was punching TB!

Click here for some photos from  the very colourful AIDS2014

From Clicktivist to Advocate

Today marks 500 days until the target date to achieve the Millennium Development Goals. As the momentum speeds up, what can we do to assist? Nicole So decided to get more involved and effective in doing her bit to help meet these important goals. Here she tells of her journey from 'clicktivist' to advocate. 

by Nicole So, Citizen Advocate

Less than a year ago, I knew nothing about advocacy.

This time last year, I was nothing more than a clicktivist. A person that cared enough to share a heart-breaking picture of a child living in poverty via my Twitter account, but didn’t quite know what else she could do.

I found RESULTS through a job advertisement for Global Health Campaign Manager. A position that I did not have the experience or qualifications for which to apply, but something about this word, advocacy, grabbed my attention.

Defined by Dictionary.com as ‘the act of pleading for, supporting, or recommending; active espousal.’

OK, that didn’t clear anything up...

Upon further research I realised:

• Words with Friends point value for advocacy is 21 points!
• Google images relates advocacy to people holding hands and/or megaphones.
• Advocacy in Portuguese is advocacy.

None of these amazing fun facts actually helped me understand advocacy better. When I finally clicked through to the RESULTS website I had a lot of questions. The biggest one was who can I contact to ask more questions, the website had so many words, flashing images, and tabs. It was overwhelming to know where to start. So, I retreated to my safe place - Facebook.

Thankfully, RESULTS has a Facebook page or my journey in advocacy could have ended right there. This is the first post that I saw:

I am not sure what intrigued or terrified me more, the idea of speaking with my local member of parliament, who happens to be the Hon. Joe Hockey, or travelling to Canberra with strangers. I stared at my screen, stupefied, for five minutes before I sent this short email to Gina the Grassroots Engagement Manager:

Hello,

My name is Nicole. I am interested to help speak to MPs in Canberra about poverty.

Please let me know more information.

Thank you.

Regards, Nicole

When my mum said, ‘don’t get into a car with strangers’, I think she meant to say, ‘except if the driver is the CEO of a non-profit organisation who is driving you to Canberra to talk to MPs about poverty’. If not, sorry mum.

That was in September 2013, fast forward to June, 2014: I am in the foyer of the Doubletree Hotel in Arlington, Virginia at the RESULTS 2014 International Conference. It is 9:00am, but my body thinks it is 11:00pm, so I rely on unrelenting enthusiasm to keep me vertical.

Plus caffeine.

The first workshop was titled ‘Who Do You Want to Be in the World?: Leadership Tips for Everyone’. I sat sheepishly at the end of a row, towards the back. Close enough so that I can see the screen without my glasses, but far back enough to melt into a sea of faces. I wasn’t sure that I had anything important to contribute, but I was wrong. Turns out, as a Citizen Advocate, I am the most important part.

Sam Daley-Harris, the founder of RESULTS opened the day with a powerful speech, reminding all of us that ordinary citizens can do extraordinary things. A part of our potential and privilege as citizens of a democratic nation is the freedom to engage and connect with our government. This is something that not enough of us are taking advantage of. The power to change the world for the better, was hidden in the idea of advocacy the whole time.

Next, Rev. Lisa Marchal captivated me with the story of her journey to working with RESULTS (US). It began with a humble recollection of her first encounter with a Person Living with HIV and the stigma she witnessed amongst her friends and family. She emphasised the necessity for a good personal story to not only teach someone how to act - but to inspire them to act. A good story can communicate morals and values through emotions and can bring global issues to a personal level. I wanted one of those, a story to bewitch, and to embolden change.

I have been to conferences before, ones where people talk at you, where you’re expected to write notes quietly, and not interact. This was not one of those. The minutes went by and I felt the community atmosphere grow. Each session was peppered with audience participation, and we were encouraged to give feedback and ask questions. I felt like I was a part of something bigger, like a cog in a well-oiled advocacy machine.

After each speaker, I was sure that my glass was too full of inspiration, I could not possibly have room for more. But the conference just kept handing me a bigger glass.

Perhaps, it was between:

• former Prime Minister and Board Chair of GPE, Julia Gillard passionately advocating for universal quality education;
• or the dizzying scrimmage to get this photo with President of the World Bank, Dr. Jim Kim after he spoke fondly of his experiences with RESULTS;

That I stopped to ask myself, How did I get here?
 
Well, the ingenuity of aeronautical engineering had a hand, but it was advocacy. Advocacy got me from Sydney, Australia to Washington DC, USA.

It empowered me as much as I use it to empower politicians to act on alleviating poverty.

Less than a year ago, I knew nothing about advocacy.

Now, I am a Citizen Advocate, and I know what it means. It means that I am one of many big-hearted people around the world in the RESULTS family, who care enough to speak loudly about the global issues that matter, for the betterment of those who are voiceless.

And Google images was right, advocacy was about holding hands and a megaphone.

So, thank you to my friends at RESULTS (Australia) who held my hand and helped me find my voice, but especially to Gina who gave me a megaphone.

AIDS 2014 – Where can the Global Fund obtain additional funding?

Mark Rice, Aaron Oxley, Carol Nyirenda and Christoph Benn

By Mark Rice, RESULTS Australia's Global Health Campaigns Manager

RESULTS Australia staff and enthusiastic volunteers joined our ACTION partners,13,600 delegates and 6,000 visitors to the Global Village at the AIDS 2014 Conference in Melbourne on 20 to 25 July.  Our daily updates during the week shared some of the excitement and highlights from the Conference. Beyond these highlights, it is also important to note how well we met RESULTS Australia’s first objective for AIDS 2014, which was to obtain a commitment from the Australian Government for an additional contribution of $125 million for the Global Fund to Fight AIDS, TB and Malaria in 2014 to 2016.

In his address to the Opening Ceremony of the Conference, Deputy Prime Minister Warren Truss only restated the Government’s three-year commitment of $200 million announced last December.   However, we may have more time than we had anticipated to seek a supplementary payment by Australia to the Global Fund.

At a session on Closing the Resource Gap for the Global Fund in 2014 to 2016 that RESULTS Australia organised at AIDS 2014, Dr Christoph Benn, Global Fund External Relations Director, indicated that the United States Government may extend an offer of a matching contribution to other Governments’ pledges, originally due to expire in September, by several months.  If an additional Australian pledge is to have the maximum impact, it is essential that the Government announces it while the US matching funding is still available.
      
This means that RESULTS Australia can continue to seek a supplementary contribution for the 2014 to 2016 period over the rest of this year, before we switch our focus to requesting a significant contribution by Australia in 2017 to 2019.  Dr Benn noted that the next Replenishment Conference for the Global Fund is likely to take place in mid-2016, so we would need to start campaigning on pledges from early 2015 to increase our chances of success.

The other presentations and discussion at the session on Closing the Resource Gap for the Global Fund concentrated on how to obtain additional funding from established donors, new national donors and private donors:

The increased and early UK pledge:   RESULTS UK’s Executive Director, Aaron Oxley, explained some of the factors that contributed to the pledge of up to £1 billion ($A 1.8 billion) by the UK Government, announced ahead of the December 2013 pledging conference:

• Having a firm, cross-party political commitment to increase overall aid by the UK meant that extra funding was available. Campaigners had strong evidence to argue the Global Fund is an excellent use for increased UK aid and in strong alignment with UK’s own goals and objectives.
• Campaigners helped create political space for a large increase by having a specific request of £1 billion. This was double the amount the UK had contributed in 2010 to 2012, and campaigners used this number consistently in communication with the public and MPs, highlighting the impact it could have on the three diseases.
• By having strong relationships with Government officials, RESULTS UK and other organisations made a credible commitment to create a strong positive (or negative) public response to a UK pledge. They collectively delivered on that commitment with an overwhelmingly positive response.

Kenya becoming a first-time donor:   Allan Ragi, Executive Director of KANCO, set out how campaigners in Kenya had obtained support from the Kenyan Government for its first-time Global Fund contribution of $2 million announced in December 2013.  The key elements in this success were:

• Relating the request for Global Fund contributions to the provisions in the Constitution of Kenya to rights to services, including health services. 
• Having both State Governors and members of the national parliament take up the request for Kenya to become a contributor.

Zambia as a potential donor:  Carol Nyirenda, Public Health Patient Advocate for CITAM+, explained that campaigners in Zambia are seeking additional domestic spending on health by the Zambian Government, so it can use contributions by donors more effectively, and is also asking Zambia to become a Global Fund contributor.  An important role for campaigners in Zambia is to educate Parliamentarians and officials on both the need for health programs, and the process for obtaining resources from the Global Fund.  Members of RESULTS Australia would be familiar with the role we also have of educating our Parliamentarians on issues, as well as making specific requests for action.

Private sector contributors:  Dr Benn noted that the business sector will support the Global Fund if their contribution is consistent with their business goals – for example, mining companies operating internationally have an interest in a healthy workforce.  If we as advocates know of businesses which are potential contributors, the Global Fund would welcome receiving contact details from these businesses.

These lessons from other countries will be valuable for us in seeking further contributions from the Australian Government in the current and future Global Fund replenishments.